In Medical Parent Life/ Parenting The Sacrifices we make I’ve had to give up a lot these last 2.5 years.And that’s not to get pitty, but to simply share some of the reality… Continue Reading →
In Advocacy/ Brain Injury/ The Brain Dear Everybody Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used… Continue Reading →
In Advocacy/ Brain Injury/ Parenting/ The Brain How did I miss this truck coming right at us? Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance… Continue Reading →
In Brain Injury/ The Brain The Unknown – A Weird Glimmer of Hope Brain Injury is full of unknowns. “Time will tell.”“We don’t know.”“We don’t know if he’ll __ and if he does, how well he’ll do… Continue Reading →
In Brain Injury/ Grief and Brain Injury/ The Brain “How can you be grieving when your child is still here?” That’s a question I’ve gotten.A question I imagine lots of people ask themselves when I post anything about the grief that comes with brain… Continue Reading →
In Advocacy/ Brain Injury/ Ethan Strong Walking down Memory Lane One of my close friends was asked not too long ago if she really thinks it’s a good idea to look back at photos… Continue Reading →
In Development/ Equipment & Tools Firefly GoTo Seat – Giving Independence so Kids don’t miss out We recently got the GoTo Postural Support Seat from Firefly. After Ethans brain injury we knew we would need a seat for him that… Continue Reading →
In Ethan Strong/ Our Brain Injury Journey REHAB RECAP – WEEK 13 Our final week at Rehab.It’s been a busy week; finalizing so many things for home, getting training, figuring out some future/follow-up care. When we… Continue Reading →
In Ethan Strong/ Our Brain Injury Journey REHAB RECAP – WEEK 12 Things are currently very busy here, as we are preparing for discharge this coming up week.Life will be very different at home now, especially… Continue Reading →
In Advocacy/ Parenting/ Parenting Talk Because we love them We hold their hands, because we love them. We hand them into the hands of someone else, because we love them. We cry many… Continue Reading →
