congenital heart defect

Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used…

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Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance…

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Brain Injury is full of unknowns. “Time will tell.”“We don’t know.”“We don’t know if he’ll __ and if he does, how well he’ll do…

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That’s a question I’ve gotten.A question I imagine lots of people ask themselves when I post anything about the grief that comes with brain…

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One of my close friends was asked not too long ago if she really thinks it’s a good idea to look back at photos…

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We recently got the GoTo Postural Support Seat from Firefly. After Ethans brain injury we knew we would need a seat for him that…

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Our final week at Rehab.It’s been a busy week; finalizing so many things for home, getting training, figuring out some future/follow-up care. When we…

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Things are currently very busy here, as we are preparing for discharge this coming up week.Life will be very different at home now, especially…

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We hold their hands, because we love them. We hand them into the hands of someone else, because we love them. We cry many…

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Little superhero 💪🏻We’re continuing to see some progress with him. He’s figured out rolling, which is super exciting. We need to constantly have eyes on…

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