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The Reimer Family is a special needs family from Canada. We will update you on #MightyTimothy and #EthanStrong and hopefully inspire you along the way.

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Dear Everybody
How did I miss this truck coming right at us?
The Unknown – A Weird Glimmer of Hope
It hits so suddenly
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mom to #mightytimothy and #ethanstrong sharing our medical life journey one square at a time.
📍Ontario, Canada

What if inclusion started in the toy box? This li

What if inclusion started in the toy box?

This little guy is getting wrapped and going under the Christmas Tree, but I had to snap a quick photo of it and share it with you guys, because how cute is this?!
Big Wheel, Little Wheel. A handmade wooden wheelchair.

I watched Amy take @the.lockwood from an idea, making little toys for her son, to opening an incredible business that promotes inclusion and helps support kids like Ethan (and her son Roger) at @hollandbloorview

You should read her incredible story and motivation behind her shop. You won’t be disappointed.

I can’t wait to watch the boys play with this 🥰

Inclusion can start in the toy box.
It should start in the toy box.
In your home.
Because unless it’s there, it’s nowhere.
And that’s wrong.

Best helper ever 🥰 We’ve started using a reg

Best helper ever 🥰

We’ve started using a regular stroller for Ethan for quick trips, such as for school pickup and to get him into therapy.
His medical stroller takes longer to get setup and take apart again, and with the colder weather coming, the less time we spend in the yucky weather the better.
Longer appointments will need the other stroller, but it’s nice that for quick 5 minute trips we can use something a bit more time efficient.

Timothy always gets so excited when he sees Ethan for school pickup. The bond these two have is absolutely incredible 🥰

Little man powered through therapy this week.
He’s definitely less tolerant, more tired and a bit more uncomfortable, but we’re letting him take charge while at the same time encouraging him to push himself a bit further.
It’s important for him to keep moving to help his lungs recover better.

We’re now starting the process to get Ethan fitted for a pair of AFO’s. Our initial plan was to wait till spring time, but his calves are getting tighter so we think the change is needed.
We’ll get a prescription written out and then we’ll get in with an Orthotic Consultant to get things started. It’s a bit of a process but will hopefully make positive changes for him 🙏🏻

4:30am wake ups are exhausting. He’s been waking

4:30am wake ups are exhausting.
He’s been waking up super early, and then can’t fall back asleep because he’s coughing too much 😓

I found out today that we most likely won’t have a night nurse through the rest of the year. They just don’t have anyone to fill the position and the nurse that will become available once another child moves into a different program is still with the other family until that transition is made, which can take quite a while apparently.
So our nursing manager said she doesn’t think it will be done this year and they’re not getting any qualified applicants for the listing they’ve posted.

That felt like a kick in the gut.
We’ve been without night nursing since the school year started.
It’s been hard.
I don’t sleep well because my brain knows it may need to jump into action at any moment, so it doesn’t fully rest.
I’m always worried that I will miss something. That he will choke, have a seizure, need something, and I won’t notice because I’m asleep.

He has a monitor on him for night which helps, but it doesn’t pick up everything.
His vitals don’t change with every type of seizure he had and prolonged seizures can be dangerous.
His alarm didn’t go off the other night when he threw up and aspirated. It took till around lunch for his numbers to start looking worse again as his body was struggling with what happened at night. And that was the second hit to his lungs within a week, one that could have been much less severe had someone been available to help support him.
Not all serious issues are caught by that monitor right away.

He qualifies.
For 5 nights a week.
Which is a big deal.
There’s a reason he qualifies, because he needs it.
But he’s not getting it.
Because no one is available to do the job.

And that’s scary.
And sad.
And not fair.

Please pray that we find someone.
He needs it.
We need it.
I want him as safe as possible, and that includes someone qualified to watch over him most nights of the week which also allows my brain to rest so I can do better during the day.

We try our best, we really do.
He’s loved, cared for, making beautiful progress, is happy and very safe.
Having a night nurse would just make it that much safer.

When your pedialyte matches your feed bag 💁🏼

When your pedialyte matches your feed bag 💁🏼‍♂️

We’re still dealing with lots of coughing, occasional saturation issues - we’re thinking he’s struggling with secretions that build up, so we go through our million step regime and he does better for a while, while keeping up with our maintenance supports too.

We got clearance again from the Paediatrician to take him to his therapies however much he tolerates it. He gets out of breath quite quickly, but she said that he needs to move as much as possible and that he’ll let us know when he’s had enough.

This last week has been absolutely exhausting.
So.
Exhausting.
But we’re home, so it’s worth it.
We’ve had a couple scary moments, close calls to making that scary 3 number call but I’m so thankful that we’re home. And I think we’re past the acute phase of it, as long as he doesn’t throw up and aspirated again.
We’re in the lengthy, slowly recovering phase that seems to take longer with every hit his lungs take.

On day at a time.

We put up the Christmas Tree today 🎄 Timothy h

We put up the Christmas Tree today 🎄

Timothy has been looking forward to it all week. Normally we decorate it at the beginning of December but it was time for some Christmas cheer.

I love that Ethan got to stand by the tree and help decorate it....well, more like relocate things...to the floor 😂

We used the Upsee without the foot attachment today so he could stand, dance and have lots of fun by the tree 🥰

#upseebyfirefly #fireflysuperfan #sponsored #christmascheer

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