Look who got a haircut to get ready for all the new girlfriends he’ll make at Rehab 😅 it ended up a bit shorter at the top than we normally have it, but give it a week…
Those cheesy cliches? They don’t help
#EthanStrong January 18th, 2020 Update
Scandinavian Almond Cake Recipe
This traditional, sweet Scandinavian treat can be served for dessert or breakfast. Your home will smell amazing while it bakes! Serves: Makes 1 loaf Prep time: 15 minutes Bake time: 40-50 minutes Ingredients List: •…
#EthanStrong January 17th, 2020 Update
This little man had a rough night and day. He woke up at 1am vomiting bile, and a lot of it. His sats dropped, which was a huge indicator he may have aspirated. Right aways…
#EthanStrong January 16th, 2020 Update
We’ve been keeping a bit of a secret, but now that I have it in hand: Ethan is on the cover of the 2020 @teamornge Calendar. How cool is that?! He’s had 3 flights total:When he was…
#EthanStrong January 15th, 2020 Update
This smile 😍Don’t let it fool you tho, he can be pretty crabby 🙈 We had a follow up appointment with the enteral (tube) feeding clinic today. Not much to be said. His site looks beautiful (and…
#EthanStrong January 11th 2020 Update
We’ve been working really hard on doing what we can at home, while we wait for Rehab. When we left the hospital we felt very lost, because we just didn’t know what to do or…
#EthanStrong January 10th, 2020 Update
Open Heart Surgery, 3 life flights, Feeding Tube, several critical care unit admissions, countless other admissions, bloodwork, pokes, tests, clinic visits, nursing visits, IV starts, ER visits, brain injury and more. Actually, we have counted….
#EthanStrong January 8th, 2020 Update
Clinic days are always draining. I had to keep Ethan awake late, and wake him early so he would be tired and more stressed for his EEG first thing in the morning (it doesn’t take…
#EthanStrong January 6th, 2020 Update
Today was a rollercoaster.He had a rough night. Woke up several times screaming, like, a brutal scream. It was scary.He slept through most of the morning.His afternoon was rough. He was extremely tachy, got mottled…
#MightyTimothy January 3rd, 2020 Update
Miracles happen! Timothy asked me to take a photo of him this morning, with his Dragon “sweetie”.So of course I did! And he didn’t even run away for once! 😂 Yesterday he was sitting with Ethan…
