Having a medically fragile child means you need to be ready to leave at any moment to deal with a trip to the doctor or emergency room. When life gets chaotic one thing we don’t…
Rehab Take 2 – Week 2
What’s in our Emergency Bag
Dear Special Needs Sibling
I know you don’t have a diagnosis next to your name or an extensive medical history. You’re used to being known as so and so’s brother/sister. Does anyone even remember your name? (They do, your…
REHAB RECAP – WEEK 13
Our final week at Rehab.It’s been a busy week; finalizing so many things for home, getting training, figuring out some future/follow-up care. When we first arrived I did not anticipate how much work going home…
Real Talk: Going home is not easy
We’ve been at Bloorview for 3 months now. Going home Thursday.Going home anxiety is in OVERDRIVE. The reality that I’m not taking home a kid that’s all better is hitting HARD. To the point where…
REHAB RECAP – WEEK 12
Things are currently very busy here, as we are preparing for discharge this coming up week.Life will be very different at home now, especially with the current world state which makes it feel like there…
REHAB RECAP – WEEK 11
Expectations. We all have them. We all get disappointed when they don’t get met, and that’s where I’m finding myself right now I guess. Disappointed? I’m not even really sure. Sad? Angry? Hurt? All of…
REHAB RECAP – WEEK 10
I won’t lie, I’m worried about the ramifications of this whole virus thing when it comes to Ethan’s recovery. There’s a good chance Ethan will come home to little or no local resources and support….
Quick Ways to De-Stress
The world is an uncertain and scary place right now, leaving many feeling anxious and stressed – me included. Here is a list of some easy activities to do that could help take your mind…
REHAB RECAP – WEEK 9
Note to self: 2 piece PJ’s are a big no. As we found out shortly after 4 am at the beginning of this week when Ethan yanked his tube out! Which meant another trip to…
Backyard Activities for kids
There is lots of fun that can be had in your very own backyard. Going to the playground, planning playdates or visiting places is not always an option, which is why I’ve come up with…
