The Brain

Several months ago Shane and I were sorting through stuff in the basement and found Ethans UpSeat. It used to be Ethans primary seat…

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That’s a question I’ve gotten.A question I imagine lots of people ask themselves when I post anything about the grief that comes with brain…

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Discharge week. This week is always really busy. Between therapy, everyone also works on making sure things are lined up in the community/home setting…

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I’ve stared at hospital hallways lots. Normally it’s to wait. Or to take a moment to breathe. It’s waiting to see how my child…

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Family Team Meeting: where every team member gets together, connects with local resources if wanted/available and we talk about goals, struggles, improvements, and discharge.…

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Can we talk about sleep?Ethan used to sleep a solid 12 hours every night. 2+ daytime naps. He slept consistently and well. Some days…

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After ending our first week on a rougher note, we adjusted meds again and things settled a bit. Our plan for consistent sleep still…

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On July 20 Ethan was readmitted for a short term intensive therapy admission at Holland Bloorview. Due to the lack of community therapy given…

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They say hindsight is 20/20.And it’s true. 2 years ago we were waiting, anxiously, for our tiny newborn to have open heart surgery.They would…

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One of my close friends was asked not too long ago if she really thinks it’s a good idea to look back at photos…

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