Advocacy

Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used…

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Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance…

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Choosing the language our children grow up around is so important. It’s important we choose the language that lifts them up, encourages them, makes…

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Did you know there is a worldwide Pandemic right now?You did. How couldn’t you. It’s EVERYWHERE. It’s consuming everything. Everywhere you look, people are…

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“Why do you take photos amongst the chaos?”That’s a question I, and many other parents of sick children have received. Why don’t we just…

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Did you know there is a worldwide Pandemic right now? You did. How couldn’t you. It’s EVERYWHERE. It’s consuming everything. Everywhere you look, people…

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One of my close friends was asked not too long ago if she really thinks it’s a good idea to look back at photos…

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Your role was already so big. Your plate so full. You’re a driver, therapist, cook, cleaner, receptionist, you name it. You did it, and…

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We hold their hands, because we love them. We hand them into the hands of someone else, because we love them. We cry many…

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I asked a Group of Heart Moms (and Dads) one Question. The Responses were honest, relatable and will hopefully help you understand a little…

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