Skip to primary navigation
Skip to main content
Skip to primary sidebar
Skip to footer

about
Lifestyle
Medical
Donations

Our Daily Adventures

Neurology

REHAB RECAP – WEEK 2

Ethan lying on bed

Rehab Recap – Week 1

Finally Making some Progress

Ethan needs prayers

WHEN MEDICAL LIFE TAKES OVER

Primary Sidebar

Recent Posts

Chocolate Chip Cookie Recipe
Firefly GoTo Seat – Giving Independence so Kids don’t miss out
Keeping our Kids Safe: A Few things to keep in mind
What’s in our Emergency Bag
Dear Special Needs Sibling

Archives

Archives

Categories

Advocacy
Brain Injury
Burn Awareness
Ethan Strong
Family Crafts
Family Life
Feeding
Food & Drinks
Heart Hero
Medical
Mighty Timothy
Neurology
Parenting

Hello & Welcome

The Reimer Family is a special needs family from Canada. We will update you on #MightyTimothy and #EthanStrong and hopefully inspire you along the way.

Footer

epilepsy mom blog 2020

Topics

Advocacy
Brain Injury
Burn Awareness
Ethan Strong
Family Crafts
Family Life
Feeding
Food & Drinks
Heart Hero
Medical
Mighty Timothy
Neurology
Parenting

@our.daily.adventures

our.daily.adventures

mom to #mightytimothy and #ethanstrong sharing our medical life journey one square at a time.
📍Ontario, Canada

We busted out 💪🏻 . Ethan was done. He had su

We busted out 💪🏻
.
Ethan was done. He had such limited space to play, and he can’t do much to begin with. We also needed to keep in mind that we had a 3 hour drive home. Lots of factors that contributed to him being sent home today.

From the quick glance at his EEG, we got no information. He behaved well and they weren’t planning on making any changes so as a team we decided he needs to just be home.

I wouldn’t be surprised if they want him back at some point and that time they’ll wean his meds, but we won’t do that till I can get more support while we’re there and he can do more to keep himself entertained.

I’m happy that his current med regime is keeping him stable, but discouraged that we wasted 2 days at the hospital. It would have been “nice” to have him have a seizure so we could see exactly where things are coming from, or have him do some of his weird little quirks to rule out seizure activity for those but for now I am grateful that his brain gets a chance to get a break and heal. He desperately needs that 👏🏻 #ethanstrong

The face you make when you’re happy and entertai

The face you make when you’re happy and entertained vs the face you make when they tell you you’re not allowed to nap all day 🙈

For real tho, today has been....interesting. Trying to keep him content and entertained has been a huge challenge and we’ve spent most of our day looking like the second picture. I don’t blame him 🤷🏻‍♀️ We haven’t had any big events while being here (yay? Not really. This is the one time we want him to have a seizure) and at first glance things have been looking ok. He’s been pretty good at home too for the last month. They didn’t adjust his meds at all, so basically this means his current regime is overall working well, but leaving with no information will also mean, that we’re leaving with no information. He also had a pretty decent night last night, and didn’t have any of the weird events us and the night nurse have noticed during his sleep - go figure 🙃
We shall see how things continue to go. They’re not planning on messing with his meds so they’re basically just seeing how he’s doing with where he’s at.

What I can tell tho is that his EEG is not sluggish anymore like it was in December 👏🏻 Praying for a peaceful night 🙏🏻
#ethanstrong

This little man is settled into the Epilepsy Monit

This little man is settled into the Epilepsy Monitoring Unit, as settled in as he can get.

We’ll literally be taking it hour by hour over here. His space is very limited and he can’t really do many activities, which means he has already gotten restless in the short time we’ve been where. And we have up to 3 days.
Right now I feel like we should have waited. Waited till Covid settles more. Waited till I don’t have to do this on my own. Waited till we maybe have more things that he can do that keep him entertained. I don’t know.

I’m just praying this is worth it. That we get answers that will help us help him, without stressing him out too much.

Brain injury is a hard journey.

#ethanstrong

Today we snuck away and enjoyed the sunshine ☀️ It was beautiful, perfect and much needed ❤️
.
Tomorrow I get to pack for our admission in Toronto and make sure everything is ready to go.
.
It never ceases to amaze me how much stuff we need to bring with us when we go anywhere with Ethan. Hopefully one day we’ll be able to just grab a little snack bag and head out the door.

Suffering and Gratefulness can and do co-exist. W

Suffering and Gratefulness can and do co-exist.

When people share a hard part of their life, it doesn’t mean they cannot see the good and that they aren’t grateful for what they have. We must remember that these things co-exist.

When someone shares a struggle, giving them a “oh but here is the good thing about life” answer doesn’t really help. It can often make things worse as it downgrades our feelings, which are very valid.

So, moms. Dads. Caregivers. I’m giving you permission to struggle with things. It’s normal.

You’re allowed to want and need a break.
To want sleep.
To want your baby to stop crying.

Just because you’ve endured hardships with your child, or a previous child, doesn’t mean you’re not allowed to have those feelings. Without feeling guilty about it.

I’ve felt guilty so often for getting frustrated when Ethan wouldn’t sleep. After all, I should simply be grateful that he is alive. That I get the opportunity to get up at night. To sit with him while he cries. To get the chance to teach him things.

And I am.
So extremely grateful.

But it’s still hard. We still get worn out. We still need sleep, rest, days that are less hectic. And that’s okay.

We’re human, after all. And so are you.

So just remember, that these things co-exist. When you see someone struggling, don’t assume they’re not grateful. Trust me, it’s there.

Just be there.
Sit.
Listen.
Be kind.
Be gentle.

Throwback to 5 years ago. Timothy had just turned

Throwback to 5 years ago.
Timothy had just turned 1 and was running everywhere, exploring the world.

Time flies.
And boy has he changed and grown up!
He’s still a huge fan of splash pads, that part hasn’t changed.

Load More... Follow on Instagram

Copyright © 2020 ⸱ Our Daily Adventures ⸱ By Hearten Made

Canadian Mom Blog 2020