In Medical Parent Life/ Parenting The Sacrifices we make I’ve had to give up a lot these last 2.5 years.And that’s not to get pitty, but to simply share some of the reality… Continue Reading →
In Medical Parent Life/ Parenting/ Parenting Talk The world changed a year ago A year ago the world changed.Mass hysteria swept over the world and shelves were emptied. People panicked and their selfishness came out my buying… Continue Reading →
In Advocacy/ Brain Injury/ Medical Parent Life Balancing the good and bad emotions Our journeys are all different.No two stories are the same.They may be similar, but not the same. I’ve been told countless times, mostly by… Continue Reading →
In CHD/ The Heart Congenital Heart Defects I didn’t know much about them until we didn’t have a choice to become an expert, because my child’s life depended on that knowledge.… Continue Reading →
In Advocacy/ Parenting Accessibility Issues Can we talk about accessibility? Or lack there of? I never realized how inaccessible this world is until I had a child who needs… Continue Reading →
In Brain Injury/ Grief and Brain Injury/ Medical Parent Life Dear one year younger me Dear one year younger me,It gets better.You will learn to cope, mostly, with this new journey you’ve been given.You will make it through.He will… Continue Reading →
In Brain Injury/ Grief and Brain Injury/ The Brain Ambiguous Grief Ambiguous Grief.Is the grief experienced by the loss of a loved one who is still alive.This is what we experience with Ethan every day.We… Continue Reading →
In Advocacy/ Brain Injury/ The Brain Dear Everybody Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used… Continue Reading →
In Nutrition/ Tube Feeding G-Tube FAQ I recently posted a button change video on Instagram and got lots of questions: and I honestly love questions like these. There is so… Continue Reading →
In Advocacy/ Brain Injury/ Parenting/ The Brain How did I miss this truck coming right at us? Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance… Continue Reading →
