Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used to it”, we just figure out how to cope, some days…
Dear Everybody
Dear Everybody
How did I miss this truck coming right at us?
Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance of how life now looks. And then it just kind of…
The Unknown – A Weird Glimmer of Hope
Brain Injury is full of unknowns. “Time will tell.”“We don’t know.”“We don’t know if he’ll __ and if he does, how well he’ll do it.”“There is no way to know.”“We don’t know about it.” All…
It hits so suddenly
Today in one of the Facebook groups I’m in, a mom asked how her daughter could have gotten sick so fast. She went to school fine that morning and she was really sick in the…
Time to let go
Several months ago Shane and I were sorting through stuff in the basement and found Ethans UpSeat. It used to be Ethans primary seat for being at the table with us. We looked at each…
Don’t Close your eyes to the hurt around you
Did you know there is a worldwide Pandemic right now?You did. How couldn’t you. It’s EVERYWHERE. It’s consuming everything. Everywhere you look, people are talking about it. Restrictions, closures, masks, distancing. But guess what.The rest…
National Air Ambulance Week – Ornge Transport
After 3 experiences with a team that were all exceptional, you know this is no one-time fluke. The standard of care is high and consistent at Ornge. Ethan had his first Ornge Life Flight at…
“How can you be grieving when your child is still here?”
That’s a question I’ve gotten.A question I imagine lots of people ask themselves when I post anything about the grief that comes with brain injury. But it’s real.It’s weird.It doesn’t even really make sense to…
Capture the Chaos
“Why do you take photos amongst the chaos?”That’s a question I, and many other parents of sick children have received. Why don’t we just focus on our child in that situation?Why do we need to…
Rehab Take 2 – Week 4
Discharge week. This week is always really busy. Between therapy, everyone also works on making sure things are lined up in the community/home setting for the child’s return home to make sure the transition is…
