In Brain Injury/ Grief and Brain Injury/ The Brain Ambiguous Grief Ambiguous Grief.Is the grief experienced by the loss of a loved one who is still alive.This is what we experience with Ethan every day.We… Continue Reading →
In Advocacy/ Brain Injury/ The Brain Dear Everybody Dear everyone,Just because we’ve had lots of admissions, tests/procedures and countless emergency room trips doesn’t mean it’s any easier. No, we don’t “get used… Continue Reading →
In Nutrition/ Tube Feeding G-Tube FAQ I recently posted a button change video on Instagram and got lots of questions: and I honestly love questions like these. There is so… Continue Reading →
In Advocacy/ Brain Injury/ Parenting/ The Brain How did I miss this truck coming right at us? Sometimes, some days I feel fine. Maybe things will be ok (whatever that actually looks like), maybe I’m finding this weird place of acceptance… Continue Reading →
In Ethan Strong/ Our Brain Injury Journey Neuro/Seizure Update We’ve had some pretty….crappy feeling? discussions with Neuro this week and the expectation will now be that given his injury and his seizure history… Continue Reading →
In Brain Injury/ Ethan Strong/ Our Brain Injury Journey/ The Brain Missing the way things should have been Today is one of those “missing the way things could have and should have been” days.He’s making some great progress, and we’re super grateful… Continue Reading →
In Ethan Strong Genetic Results are in Several months ago we sent in samples to do a WES Genetic test. Whole Exome Sequencing. To see if there is a genetic reason… Continue Reading →
In Brain Injury/ Ethan Strong/ Our Brain Injury Journey/ The Brain Brain Injury is full of Unknowns Brain Injury is full of unknowns.“Time will tell.”“We don’t know.”“We don’t know if he’ll ____ and if he does, how well he’ll do it.”“There… Continue Reading →
In Brain Injury/ The Brain The Unknown – A Weird Glimmer of Hope Brain Injury is full of unknowns. “Time will tell.”“We don’t know.”“We don’t know if he’ll __ and if he does, how well he’ll do… Continue Reading →
In Development/ Equipment & Tools/ Therapy Creepster Crawler We tried out a new fancy tool today, introducing: The Creepster Crawler It’s a device used to help assist with crawling, by taking the… Continue Reading →
