Time to let go

Several months ago Shane and I were sorting through stuff in the basement and found Ethans UpSeat. It used to be Ethans primary seat for being at the table with us. We looked at each…

Sometimes superheroes reside in the hearts of small children fighting big battles.

Capture the Chaos

“Why do you take photos amongst the chaos?”That’s a question I, and many other parents of sick children have received. Why don’t we just focus on our child in that situation?Why do we need to…

Rehab Take 2 – Week 4

Discharge week. This week is always really busy. Between therapy, everyone also works on making sure things are lined up in the community/home setting for the child’s return home to make sure the transition is…

Rehab Take 2 – Week 3

Family Team Meeting: where every team member gets together, connects with local resources if wanted/available and we talk about goals, struggles, improvements, and discharge. We knew coming in it would be a 4 week admission,…